Hello friends, how are you today?
It has been a long time since you’ve heard from me because my son continues to fight for his life. His struggle started on August 1st. The day before Thanksgiving, we went by ambulance to the PICU at a hospital two hours away from us. We found out he had a fungal infection in his blood which developed because of his pic line. He also could not clear the post operative meningitis, so the doctors removed his baclofen pump and spinal catheter to give his body a better chance of fighting the infection. He spent a week in the PICU before moving to the regular floor. The photo above was his view.
He continues to struggle with fevers, delirium, and pain. The doctors did an MRI and found “debris” in his brain. Yesterday was quite terrifying as we waited to find out if they would do brain surgery to remove it. Late in the day we were told that the “debris” is old, treated infection that will clear up on its own and he will not need brain surgery. You can imagine what a relief that was! We also found out that the fungal infection is gone. (That infection has up to a 60% fatality rate, so this news is overwhelmingly good.)
Currently, the plan is to keep him in the hospital on iv antibiotics for 10 more days and then send him home. We do not know why he continues to have delirium and fevers. It could be baclofen withdrawal, but it usually would have passed by now, so the doctors continue to look for another source. We also do not know if he will have long term damage from all of this, but the MRI did not show evidence of brain damage, so the doctors are hopeful that he will make a full recovery.
To watch one’s child suffer and be helpless to put an end to it has to be one of life’s greatest trials. But today, Thomas continues to fight and we are so very grateful. So many of you have reached out to me with comments, emails and cards. THANK YOU! Your love, prayers and support have been such a life line through all of this.
Despite my absence, November was a great month for my business. Thank you to my team and my customers, as well as my readers. You are all wonderful and I am looking forward to getting back to the joy of creating and sharing with you. Until then, thank you rom the bottom go my heart for your support.