The Long Journey Continues

hospital

Hello friends, how are you today?

It has been a long time since you’ve heard from me because my son continues to fight for his life. His struggle started on August 1st. The day before Thanksgiving, we went by ambulance to the PICU at a hospital two hours away from us. We found out he had a fungal infection in his blood which developed because of his pic line. He also could not clear the post operative meningitis, so the doctors removed his baclofen pump and spinal catheter to give his body a better chance of fighting the infection. He spent a week in the PICU before moving to the regular floor. The photo above was his view.

He continues to struggle with fevers, delirium, and pain. The doctors did an MRI and found “debris” in his brain. Yesterday was quite terrifying as we waited to find out if they would do brain surgery to remove it. Late in the day we were told that the “debris” is old, treated infection that will clear up on its own and he will not need brain surgery. You can imagine what a relief that was! We also found out that the fungal infection is gone. (That infection has up to a 60% fatality rate, so this news is overwhelmingly good.)

Currently, the plan is to keep him in the hospital on iv antibiotics for 10 more days and then send him home. We do not know why he continues to have delirium and fevers. It could be baclofen withdrawal, but it usually would have passed by now, so the doctors continue to look for another source. We also do not know if he will have long term damage from all of this, but the MRI did not show evidence of brain damage, so the doctors are hopeful that he will make a full recovery.

To watch one’s child suffer and be helpless to put an end to it has to be one of life’s greatest trials. But today, Thomas continues to fight and we are so very grateful. So many of you have reached out to me with comments, emails and cards. THANK YOU! Your love, prayers and support have been such a life line through all of this.

Despite my absence, November was a great month for my business. Thank you to my team and my customers, as well as my readers. You are all wonderful and I am looking forward to getting back to the joy of creating and sharing with you. Until then, thank you rom the bottom go my heart for your support.

 

Michelle

 

23 thoughts on “The Long Journey Continues

  1. OMGoodness…what a struggle for you and your Son! I wish the best for you and yours!!! I will keep you in my thoughts and prayers! It’s never easy to have a child suffer and there’s nothing you can do for them but pray! Blessings!

  2. Michelle, So sorry for this extremely long struggle with your son’s health. You are right that this is so difficult for a parent. You must feel so helpless… Sending prayers of strength and courage and hope. Your recent post was very positive, lots of good stuff going on despite all the medical issues.

    Support system – hope you have one. If not, strongly recommend a Stephen Minister from a local church, if they have the program. If not, give me a holler!

  3. Hi Michelle – I can’t imagine what it would be like in your shoes. My stomach is in knots just reading what is happening with your son, and suddenly my own struggles with my teenage daughter seem very small. I hope he finishes healing quickly, and that he is back to ‘normal’ soon. Love & prayers, C.

  4. Michelle, as a mother myself, my heart goes out to you and your family. I have you all in my prayers. Let your stamping family know if there’s anything we can do to help you guys out. Gifts, cards, and of course prayers. Anything at all! God Bless you ALL!

  5. Michelle, I am so sorry for all that your family is going through. I will keep you and yours in my prayers. God bless you. ❤️

  6. Hi Michelle, I am keeping Thomas and your family in my prayers. I’m happy to hear he does not need brain surgery. You guys have dealt with and continue to deal with so much sadness. I agree there is nothing worse than to see your child suffering and all you can do is sit by and watch. I’m sure your son is most grateful his mom is by his side. It will give him continued strength and the desire to continue to fight for his life. I will keep you all in my prayers. God Bless you all and keep Thomas safe in your arms. Take care of yourself Michelle ❤️❤️

    Gayle Reinhard Gayle-rn@sbcglobal.net

    Sent from my iPhone

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  7. It does my heart good to hear from you. We all know God has every thing in control but silence makes us wonder . Keep your faith and in his time God will continue to heal and uphold you each moment. Of course…continued prayers for you and your son and other family members.

  8. Continue to find the strenght to get your loved one through all this. Know that there are many prayers and much love sent to you from all around the world. Take a little time for yourself so that you are not worn out as well. I know that is easy for me to say but believe me I can speak from experience. much love. Rosalie.

  9. Dear Michelle: So very sorry for the heart wrenching challenges you, your son and your family are facing. I will add all of you and the medical team to my prayers. Know that many people are praying for you; may His peace and comfort sustain you and that He will bless Thomas with the healing he needs and relief from the pain he may be enduring!

  10. It has been a long struggle…bless your heart. I continue to pray for you and Thomas and all of your family, and hope that God will give you a Christmas miracle of healing and wellness.

  11. My heart continues to break for you and your family. Please know that I continue to pray for your strength and your son’s healing and comfort! Hoping you’re blessed with a Christmas miracle. Peace.

  12. Michelle, I cannot even begin to imagine your journey. My prayers are for you, your son, your family and those caring for and supporting their work. I believe you have a strong faith which will help you on this frustrating and tough path. What great news you have received I hope you continue to get more good news. Hopefully your son will react positively to the prescribed treatment and be able to recover without many ill effects.

    Sincerely,

    Jane Nied Sent from my iPad

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  13. Michelle,

    My thoughts and prayers are with you, your family, and your son. Have faith and remember that God WILL take care of this!

  14. Hi Michelle, I can’t imagine how tough it has been for you. I’m also a demonstrator and enjoy your posts, they have been an inspiration to me. I’ll continue to pray for you and hope that things continue to improve. I hope that the plan he’ll be able to come home means he is on his way to recovery and he’ll be well soon. Good luck with everything and maybe I’ll be you at a Stampin’ Up! event someday. Your creative coach, Cyndy Ponczek Stampin’ Up! Demonstrator 908-310-1594 Paper Pumpkin kits, want to join? Visit https://mypaperpumpkin.com/en/?demoid=69701 to join! Check out my website for classes, samples & specials http://www.cyndystamps.stampinup.net Want to get an item at 50% off! Ask me how. If you no longer wish to receive my SU emails, please reply to this e-mail with ‘Remove’ in the subject.

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  15. Sending you my love, and whispering prayers that your gift this Christmas is the health and well being of your son, Thomas.

    Thank you for your email the other day, and I’ll respond by email.
    In the meantime, know that everyone has you in their hearts and minds, and there is an abundance of love being sent to you and Thomas.
    God Bless you all.
    Love ~ Cobs. x

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